Sam Clark
Sam Clark's Fundraiser

We CAN for INAD: Working Together to Find a Cure.

Join me and help make a difference, please give today.

$5,830 towards $5,000

Caleb Clark's Fundraiser to #BeatINAD

Hi friends and family

As you know our son Caleb has been diagnosed with Infantile Neuro Axonal Dystropy (INAD). For those of you unfamiliar with INAD, it's is an extremely rare, inherited degenerative disorder of the nervous system. The symptoms of INAD usually start to appear between the ages of 6 months and 2 years. A common pattern in young children is loss of previously acquired skills, mental and physical ability and progression of the disease over time. The progression of INAD is usually rapid after the initial onset of symptoms. Many affected children never learn to walk or lose this ability shortly after learning it. During the last stages of the disease, severe tight or stiff muscles, progressive cognitive decline and problems with vision have a large impact on daily life. Unfortunately, many children with INAD do not live beyond age 10, but some do survive into their teens or later ages.

Caleb means the world to us. He is a bright and bubbly little boy who can always find a smile no matter how hard his day is. Currently, there is no cure for INAD and given it's is a very rare disease, there is little funding for research. But that shouldn't mean that the families impacted by INAD can't have hope. It just means that we all have to come together to help.

Until now, there has not been a unified voice to raise funds necessary for scientific research into finding better treatments and ultimately a cure for this devastating disease. Thanks to the efforts of a some determined and caring individuals, the INADcure Foundation has been formed and is the only nonprofit dedicated exclusively to INAD community.

Check out Caleb's fundraising page and please consider making a donation to help me reach my goal. Your support will truly make a difference in the lives of the families impacted by INAD. Caleb doesn't deserve INAD. No one does. So let's try and do something about it.