"Generous cash donation from the ALC event today...! "
"Happy Belated Birthday Em!! Love you HEAPS! Bisou HEAPS."
"Hi Leo, Wish you the best! Your smile radiates such much joy. You are such a precious cutie! "
"Happy Valentine's Day Leo!"
"In honor of Dylan Steckler’s 8th birthday! Xoxo, E,L, and M Steckler "
Hello Families & Friends,
The INADcure Foundation was founded in 2016 to be the much needed unified voice of the INAD community and to provide a centralized effort to raise funds necessary for scientific research into finding better treatments and ultimately a cure for this devastating disease. We are the only U.S. based nonprofit dedicated exclusively to the INAD community. We received our official IRS 501(c)(3) not-for-profit designation in 2017. Since its inception in 2016, the Foundation has raised over half a million dollars to support research.
So, how can you help? We are asking families who are impacted by INAD, and those who are close to them, to help and make a direct impact by starting a personal or family fundraiser as part of our campaign.
How is the money raised going to be used? As you may know, there is very little money dedicated towards rare disease research. Funds raised through this campaign will primarily support the INADcure Foundation's grant making program. The Foundation will identify and fund the most promising INAD research projects. Members of our Foundation are actively forging partnerships with academic institutions, biotechnology and pharmaceutical companies to identify, and find out how we can help accelerate, the development of treatments and research.
Starting a fundraiser is easy to do, and it's fun. We'll even give you all the tools you'll need to make a difference. Please set up your own personal fundraising page today! We are here to help you every step of the way - and you'll be amazed at how much you can accomplish with the support of your family and friends. Please email us at info@INADcure.org if you need any help setting up your fundraising page or have any questions about this campaign and how you can help!