"we are praying for a cure for your son. all our love, taryn, darren and scarlett"
"Sending love and hope to Leo and his family."
Hello Families & Friends,
The INADcure Foundation was founded in 2016 to be the much needed unified voice of the INAD community and to provide a centralized effort to raise funds necessary for scientific research into finding better treatments and ultimately a cure for this devastating disease. We are the only U.S. based nonprofit dedicated exclusively to the INAD community. We recently received our official IRS 501(c)(3) not-for-profit designation, and to help us kick off our inaugural year, we are launching a new fundraising campaign with high hopes! Together, we are hoping the INAD community, and those who love and support us, can raise a collective (and unprecedented) $1,000,000 (yes! that is ONE MILLION DOLLARS) by December 31, 2018.
** Thanks to a generous donor, as of January 1, 2018 all donations to the INADcure Foundation will be matched dollar for dollar up to $200,000!!
So, how can you help? We are asking families who are impacted by INAD, and those who are close to them, to help and make a direct impact by starting a personal or family fundraiser as part of our campaign.
How is the money raised going to be used? As you may know, there is very little money dedicated towards rare disease research. Funds raised through this campaign will primarily support the INADcure Foundation's grant making program. The Foundation will identify and fund the most promising INAD research projects. Members of our Foundation are actively forging partnerships with academic institutions, biotechnology and pharmaceutical companies to identify, and find out how we can help accelerate, the development of treatments and research.
We are asking families who are impacted by INAD, and those who are close to them, to help and make a direct impact by starting a personal or family fundraiser as part of our campaign.
Starting a fundraiser is easy to do, and it's fun. We'll even give you all the tools you'll need to make a difference. Please set up your own personal fundraising page today! We are here to help you every step of the way - and you'll be amazed at how much you can accomplish with the support of your family and friends. Please email us at info@INADcure.org if you need any help setting up your fundraising page or have any questions about this campaign and how you can help!